Comments on: Celiac disease http://www.sagedonnelly.com/2008/09/16/celiac-disease/ Kayaker, Skier, Diabetic Tue, 03 Jan 2012 21:53:29 +0000 http://wordpress.org/?v=2.9.2 hourly 1 By: Erik Janson http://www.sagedonnelly.com/2008/09/16/celiac-disease/comment-page-1/#comment-4 Erik Janson Wed, 01 Oct 2008 04:48:11 +0000 http://www.sagedonnelly.com/?p=96#comment-4 Sage, You are so fortunate to learn about your Celiac Disease at such a young age. I myself was fortunate that I had an early diagnosis. Most people who have celiac disease never know it or have decades of health issues before they are properly diagnosed. Right around the time I was diagnosed my uncle was diagnosed with sarciadosis, another auto-immune disease. After my family learned more about the disease and learned that it is a genetic disease we suggested to him that he might have it. When he suggested it to his doctors they dismissed it. He went gluten free on his own two years ago and today has no symptoms of sarciadosis. Since my diagnosis my mother and two of my aunts have asked thier doctors and been diagnosed with it as well. This disease runs in families and it is almost certain that one of your parents has it and it is asymptomatic. The reason the medical community has been so hesitant in the past to diagnose this disease is because it has such a wide array of symptoms and is often asymptomatic. Close to 1 in 100 people have this disease and 90% of them are undiagnosed. As difficult as a gluten free lifestyle can be you won't have to suffer for years as so many others have. I reccomend that you or your parents read a book called "Celiac Disease a Hidden Epidemic" which the washoe county library has. ISBN 978-0-06-076693-1 http://www.amazon.com/Celiac-Disease-Peter-H-r-Green/dp/006076693X/ref=pd_bbs_sr_1?ie=UTF8&s=books&qid=1222836170&sr=8-1 Sage,
You are so fortunate to learn about your Celiac Disease at such a young age. I myself was fortunate that I had an early diagnosis. Most people who have celiac disease never know it or have decades of health issues before they are properly diagnosed. Right around the time I was diagnosed my uncle was diagnosed with sarciadosis, another auto-immune disease. After my family learned more about the disease and learned that it is a genetic disease we suggested to him that he might have it. When he suggested it to his doctors they dismissed it. He went gluten free on his own two years ago and today has no symptoms of sarciadosis. Since my diagnosis my mother and two of my aunts have asked thier doctors and been diagnosed with it as well. This disease runs in families and it is almost certain that one of your parents has it and it is asymptomatic. The reason the medical community has been so hesitant in the past to diagnose this disease is because it has such a wide array of symptoms and is often asymptomatic. Close to 1 in 100 people have this disease and 90% of them are undiagnosed. As difficult as a gluten free lifestyle can be you won’t have to suffer for years as so many others have.
I reccomend that you or your parents read a book called “Celiac Disease a Hidden Epidemic” which the washoe county library has.
ISBN 978-0-06-076693-1
http://www.amazon.com/Celiac-Disease-Peter-H-r-Green/dp/006076693X/ref=pd_bbs_sr_1?ie=UTF8&s=books&qid=1222836170&sr=8-1

]]> By: ursula http://www.sagedonnelly.com/2008/09/16/celiac-disease/comment-page-1/#comment-3 ursula Fri, 19 Sep 2008 05:15:31 +0000 http://www.sagedonnelly.com/?p=96#comment-3 You can do it! There are a lot of great blogs out there that can give you tips. Do a google alert for celiac disease and one for gluten free and that will help you locate some that might interest you! Peace! You can do it! There are a lot of great blogs out there that can give you tips. Do a google alert for celiac disease and one for gluten free and that will help you locate some that might interest you!

Peace!

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